Great Online Resources for Pheochromocytoma and Paraganglioma

http://pheo-para-alliance.org/

http://pheoparatroopers.org/

Pheochromocytoma Support Board on Facebook

http://www.facebook.com/pages/Pheochromocytoma-Support-Board/238291802255?ref=ts&v=wall

Pheochromocytoma Support Group on Facebook

http://www.facebook.com/#!/group.php?gid=2295628620&ref=ts

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Bright Pink Event

Join Bright Pink in creating mouth-watering desserts and mingling with other young women at high risk for breast and ovarian cancer

EVENT: Bright Pink Connecticut’s Dessert Baking Event

DATE: Thursday, July 22nd

TIME: 7:00-8:30 p.m.

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Special Event Wednesday June 2, 2010

Visit Lucinda's Hair in Cheshire, CT for a special event discussing hair restoration options for patients undergoing chemotherapy and radiation treatments. Wednesday, June 2, 2010 from 5:00-7:00 pm at 650 Highland Avenue, Route 10, Cheshire, CT 06410. Read more!

Cleaning for a Reason

Cleaning for a Reason provides FREE housecleaning for women undergoing chemotherapy. The services provides 1 cleaning a month for up to 4 months. They serve the entire USA and currently have 547 partners. Please visit their website for more information and details on how to apply.

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Yoga May Help Cancer Patients After Treatment

Click on the above light blue link for the full article. Read more!

DTC Genomics Targeted by Congressional Investigation

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FDA investigates new controversial genetic testing.

Ellen Matloff, MS, Director of the Yale Cancer Center Genetic Counseling Program, recently participated in interviews for NBC Nightly News and The Today Show with health correspondent Robert Bazell to discuss the commercial availability of genetic testing kits. Walgreen's had planned to sell genetic testing kits through their stores throughout the country beginning today, but later announced they will delay their plans. Click on the above light blue link to see the video. Read more!

New video!

Please click on the above light blue link to visit our new video featuring Ellen, a healthy woman who learned that she carries a BRCA mutation. Ellen’s mother died from ovarian cancer and she is of Jewish ancestry. In her video, she discusses her experiences with genetic counseling, talking with her children about her result and her decision process to have a prophylactic bilateral mastectomy and oophorectomy. Also hear from her husband, who discusses what this experience was like for him. Thank you for sharing your story Ellen! Read more!

Our video library is expanding!

Our video library is expanding! Please click on the above light blue link to view our recently uploaded video featuring Tracey. Based on her personal history of breast cancer and her family history of ovarian cancer, Tracey chose to pursue genetic counseling and learned that she carried a BRCA mutation. In her video, she discusses her difficult decision to have her ovaries removed and her concerns about the possible menopausal side effects from that surgery. Thanks for sharing your story Tracey! Read more!

Myriad raises price of BRCA testing, again.

On April 1, 2010 - three days after a court ruling that invalidated Myriad's patents on the BRCA1 and BRCA2 genes (associated with hereditary breast and ovarian cancer) the company increased their prices for genetic testing. Old cost =$3,770. New cost = $4,040 for full sequencing plus rearrangement testing.

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