The New York Times recently featured Dr. Nassbaum, who has taken on a huge project -
catalog all of the mutation data on the BRCA genes from researchers
throughout the country. This will be essential information once BRCA
testing is allowed by other laboratories.
Here's a link to the work his group is doing:
http://www.sharingclinicalreports.org/
Here's a link to the New York Times article:
http://www.nytimes.com/2013/04/13/health/dna-project-aims-to-make-companys-data-public.html?pagewanted=1&_r=3&ref=health&
Yale is participating to make this project happen!